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Enhancing Participant Recruitment to Clinical Trials Webinar: May 29

You are invited to this webinar, “Enhancing Participant Recruitment to Clinical Trials” on May 29, 2014 from 12:00 p.m. to 1:30 p.m. EDT. The webinar is free to AMIA members only. Attending the webinar costs $50 for non-AMIA members. This webinar will bring together thought leaders to address the challenge of clinical trial participant recruitment through … Continue reading Enhancing Participant Recruitment to Clinical Trials Webinar: May 29

Regulatory and Real World Evidence Challenges of Rare Diseases and Orphan Drugs – May 28

Therapeutics for rare diseases face unique challenges in addressing regulatory and market access requirements around the world. This webinar will provide an overview of the European, US and Canadian landscapes for these products. Our speakers will share their experience from the regulatory, market access and commercial perspectives. Wednesday, May 28 11:00 a.m. – 12:30 p.m. … Continue reading Regulatory and Real World Evidence Challenges of Rare Diseases and Orphan Drugs – May 28

Resource Center Office Hours: May 27 – Rainu Kaushal, MD, Florian Eichler, MD, and Elizabeth McGlynn, PhD

Web Conference Meeting Info: Tuesday, May 27, 2014 Time: 1:00-2:00 pm, Eastern Standard Time The following Partners will introduce their Networks and be available to answer questions related to PCORnet activities and to discuss opportunities for collaboration: Rainu Kaushal, MD, MPH – NYC-CDRN New York City Clinical Data Research Network Chairman of Public Health Weill … Continue reading Resource Center Office Hours: May 27 – Rainu Kaushal, MD, Florian Eichler, MD, and Elizabeth McGlynn, PhD

Grand Rounds: May 23 – Cynthia George, MSN, CRNP

A Shared Forum of the NIH Health Care Systems Research Collaboratory and PCORnet Speaker: Cynthia George, MSN, CRNP Senior Director Patient Engagement Cystic Fibrosis Foundation Topic: Creating a Culture of Research Date: Friday, May 23, 2014, 1:00-2:00 p.m. ET Join the conversation on Twitter: @PCTGrandRounds  #pctGR Pragmatic Clinical Trials Grand Rounds are hosted weekly by the NIH HCS … Continue reading Grand Rounds: May 23 – Cynthia George, MSN, CRNP

Resource Center Office Hours: May 20 – Russ Waitman, PhD

Web Conference Meeting Info: Tuesday, May 20, 2014 Time: 2:00-3:00 pm, Eastern Standard Time The following Partner will introduce his Network and be available to answer questions related to PCORnet activities and to discuss opportunities for collaboration: Russ Waitman, PhD, Director of Medical Informatics University of Kansas Medical Center (Greater Plains Collaborative) Meeting Number: 736 869 … Continue reading Resource Center Office Hours: May 20 – Russ Waitman, PhD

Grand Rounds: May 16 – Russ Waitman, PhD

A Shared Forum of the NIH Health Care Systems Research Collaboratory and PCORnet Speaker: Russ Waitman, PhD Director of Medical Informatics University of Kansas Medical Center Topic: The Greater Plains Collaborative: a PCORNet Clinical Data Research Network’s Strategies for Creating an Interoperable Architecture Date: Friday, May 16, 2014, 1:00-2:00 p.m. ET Join the conversation on Twitter: @PCTGrandRounds  #pctGR … Continue reading Grand Rounds: May 16 – Russ Waitman, PhD

Resource Center Office Hours: May 15 – JeanHee Moon, PhD and Sarah Pallin, MPH

Web Conference Meeting Info: Thursday, May 15, 2014 Time: 11:00 am-12:00 pm (noon) , Eastern Standard Time The following Partners will introduce their Networks and be available to answer questions related to PCORnet activities and to discuss opportunities for collaboration: JeanHee Moon, PhD, Program Manager Children’s Hospital of Philadelphia – PROMIS Sarah Pallin, MPH, Evaluation … Continue reading Resource Center Office Hours: May 15 – JeanHee Moon, PhD and Sarah Pallin, MPH

Webinar: Uses of Electronic Data to Support Clinical Trials project – May 15

Clinical Trials Transformation Initiative (CTTI) Update Patrick Archdeacon and Richard Platt will present an update on the “Uses of Electronic Data to Support Clinical Trials project,” a collaborative effort with Mini-Sentinel. Thursday, 5/15/2014 12:00 – 1:00 pm (ET) Webinar via WebEx: https://dukemed.webex.com/dukemed/j.php?MTID=m27634ad504de56e6e23456b195047753

In the News: The Promise and Perils of a New Project to Share Individual Patient Records

Posted April 17, 2014; The Diane Rehm Show, NPR The Promise and Perils of a New Project to Share Individual Patient Records In a new effort to improve medical care, a group of hospitals, clinics and insurers is pooling patient data. We discuss the promise and perils of sharing individual patient records.  One panelist is Dr. … Continue reading In the News: The Promise and Perils of a New Project to Share Individual Patient Records

In the News: Building PCORnet as a Secure Platform for Outcomes Research

April 17, 2014 by Joe Selby, MD, MPH, PCORI.org As we’ve begun the 18-month development of PCORnet, the National Patient-Centered Clinical Research Network, many people have expressed their excitement about the promise of this ambitious effort. After all, PCORnet aims to harness the potential of the vast amounts of health care data stored in electronic … Continue reading In the News: Building PCORnet as a Secure Platform for Outcomes Research