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In the News: Scientists embark on unprecedented effort to connect millions of patient medical records

By Ariana Eunjung Cha, The Washington Post. Published: April 15  Inside an otherwise ordinary office building in lower Manhattan, government-funded scientists have begun collecting and connecting together terabytes of patient medical records in what may be one of the most radical projects in health care ever attempted. The data — from every patient treated at one of … Continue reading In the News: Scientists embark on unprecedented effort to connect millions of patient medical records

Why PCORnet Exists

PCORnet, the National Patient-Centered Clinical Research Network, will transform clinical research by engaging patients, care providers and health systems in collaborative partnerships to improve healthcare and advance medical knowledge. By bringing research and patient care together, this innovative health data network will be able to explore the questions that matter most to patients and their … Continue reading Why PCORnet Exists

Resource Center Office Hours: April 28 – Lisa Schlager, Megan O’Boyle, and Susan Redline

Web Conference Meeting Info: Monday, April 28, 2014 Time: 11:00 am-12:00 pm (noon), Eastern Standard Time The following Partners will introduce their Networks and be available to answer questions related to PCORnet activities and to discuss opportunities for collaboration: Lisa Schlager – ABOUT Network: American BRCA Outcomes and Utilization of Testing Patient-Powered Research Network PPRN … Continue reading Resource Center Office Hours: April 28 – Lisa Schlager, Megan O’Boyle, and Susan Redline

Grand Rounds: April 25 – Cynthia Hahn and Petra Kaufman, MD

A Shared Forum of the NIH Health Care Systems Research Collaboratory and PCORnet Speakers: Cynthia Hahn, VP, Clinical Research and Regulatory Affairs North Shore-LIJ Health System Petra Kaufmann, MD, MSc, Director, Office of Clinical Research, National Institute of Neurological Disorders and Stroke National Institutes of Health Topic: CTTI Advancing the Use of Central IRBs Project: … Continue reading Grand Rounds: April 25 – Cynthia Hahn and Petra Kaufman, MD

Heath System Leaders Working Towards High Value Care through Integration of Care and Research: April 23-24

This workshop, sponsored by the Patient Centered Outcomes Research Institute (PCORI) and convened by the Institute of Medicine, will engage health system leaders in a discussion of the issues, challenges, and approaches that present the greatest opportunity for executive engagement in leadership of efforts to generate new knowledge in the routine delivery of medical care as … Continue reading Heath System Leaders Working Towards High Value Care through Integration of Care and Research: April 23-24

Resource Center Office Hours: April 21

Web Conference Meeting Info: Monday, April 21, 2014 Time: 11:00 am-12:00 pm (noon), Eastern Standard Time The following Partners will introduce their Networks and be available to answer questions related to PCORnet activities and to discuss opportunities for collaboration: Sharon Terry, CENA PPRN Dr. Richard Mularski,  COPD PPRN Dr. Mark Pletcher, eHeartAlliance PPRN Call for … Continue reading Resource Center Office Hours: April 21

Grand Rounds: April 18 – Michael Kahn, MD

A Shared Forum of the NIH Health Care Systems Research Collaboratory and PCORnet Speaker: Michael G. Kahn, MD, PhD Professor, Department of Pediatrics University of Colorado, Aurora, Colorado Topic: Building PCOR Value and Integrity with Data Quality and Transparency Standards: An introduction and request for input Date: Friday, April 18, 2014, 1:00-2:00 p.m. ET Join the conversation on Twitter: … Continue reading Grand Rounds: April 18 – Michael Kahn, MD

Resource Center Office Hours: April 15

Web Conference Meeting Info: Tuesday, April 15, 2014 Time: 2:00-3:00 pm, Eastern Standard Time Call for volunteers to present!  Get better acquainted with our PCORnet partners and identify potential points of collaboration. We’re accepting volunteers to introduce their Networks during Office Hours.  Contact Rebecca (Becky) Wilgus, RN, MSN, to volunteer or ask questions: 919.668.8897 (O) | 919.971.4629 … Continue reading Resource Center Office Hours: April 15

Grand Rounds: April 11

A Shared Forum of the NIH Health Care Systems Research Collaboratory and PCORnet Rethinking Clinical Research Speaker: Richard Platt, MD, MSc Co-Principal Investigator, Coordinating Center, NIH HCS Research Collaboatory Principal Investigator, Coordinating Center, PCORnet Professor and Chair of the Department of Population Medicine​ Harvard Pilgrim Health Care Institute Topic: A PCORnet Update Date: Friday, April 11, 2014, 1:00-2:00 … Continue reading Grand Rounds: April 11