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Webinar: Uses of Electronic Data to Support Clinical Trials project – May 15

Clinical Trials Transformation Initiative (CTTI) Update Patrick Archdeacon and Richard Platt will present an update on the “Uses of Electronic Data to Support Clinical Trials project,” a collaborative effort with Mini-Sentinel. Thursday, 5/15/2014 12:00 – 1:00 pm (ET) Webinar via WebEx: https://dukemed.webex.com/dukemed/j.php?MTID=m27634ad504de56e6e23456b195047753

In the News: The Promise and Perils of a New Project to Share Individual Patient Records

Posted April 17, 2014; The Diane Rehm Show, NPR The Promise and Perils of a New Project to Share Individual Patient Records In a new effort to improve medical care, a group of hospitals, clinics and insurers is pooling patient data. We discuss the promise and perils of sharing individual patient records.  One panelist is Dr. … Continue reading In the News: The Promise and Perils of a New Project to Share Individual Patient Records

In the News: Building PCORnet as a Secure Platform for Outcomes Research

April 17, 2014 by Joe Selby, MD, MPH, PCORI.org As we’ve begun the 18-month development of PCORnet, the National Patient-Centered Clinical Research Network, many people have expressed their excitement about the promise of this ambitious effort. After all, PCORnet aims to harness the potential of the vast amounts of health care data stored in electronic … Continue reading In the News: Building PCORnet as a Secure Platform for Outcomes Research

PCORnet Overview: Master Slidedeck for Presenters

This is the “master” slide deck that explains PCORnet in detail, including the rationale behind it, what it will do to achieve its goals, and how it is structured. It is expected that there will be some tailoring of content for the specific audience and the purpose of the presentation, but we encourage presenters to … Continue reading PCORnet Overview: Master Slidedeck for Presenters

Grand Rounds: May 2 – Michael Becich, MD

A Shared Forum of the NIH Health Care Systems Research Collaboratory and PCORnet Speaker: Michael Becich, MD, PhD Department of Biomedical Informatics University of Pittsburgh School of Medicine Topic: Translational Informatics: From PCORI to NCI to BD2K – The Pittsburgh Roadmap for Unlocking the Value of Health Data from EHRs Date: Friday, May 2, 2014, 1:00-2:00 p.m. ET … Continue reading Grand Rounds: May 2 – Michael Becich, MD

Call for Papers: JAMIA Issue on Biomedical Data Standards

The Journal of the American Medical Informatics Association announces a Call for Papers for a Special focus Issue on Biomedical Data Standards Summary of Special Focus Issue JAMIA guest editors Drs. Rachel Richesson (PCORnet Rare Diseases Task Force) and Christopher Chute are soliciting submissions on the role and use of biomedical data standards in the … Continue reading Call for Papers: JAMIA Issue on Biomedical Data Standards

In the News: Researchers Leverage Database of Chicago Residents to Address Health Disparities

Greg Goth, Health Data Management. Posted April 14, 2014 A consortium of health data researchers in Chicago is leveraging work on several projects and a recent $7 million round of funding from the Patient-Centered Outcomes Research Institute to advance both study recruitment and quantitatively-based public health delivery. The PCORI-funded project, the Chicago Area Patient-Centered Clinical … Continue reading In the News: Researchers Leverage Database of Chicago Residents to Address Health Disparities

In the News: Scientists embark on unprecedented effort to connect millions of patient medical records

By Ariana Eunjung Cha, The Washington Post. Published: April 15  Inside an otherwise ordinary office building in lower Manhattan, government-funded scientists have begun collecting and connecting together terabytes of patient medical records in what may be one of the most radical projects in health care ever attempted. The data — from every patient treated at one of … Continue reading In the News: Scientists embark on unprecedented effort to connect millions of patient medical records

Why PCORnet Exists

PCORnet, the National Patient-Centered Clinical Research Network, will transform clinical research by engaging patients, care providers and health systems in collaborative partnerships to improve healthcare and advance medical knowledge. By bringing research and patient care together, this innovative health data network will be able to explore the questions that matter most to patients and their … Continue reading Why PCORnet Exists