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Resource Center Office Hours: April 7

Web Conference Meeting Info: Monday, April 7, 2014 Time: 9:00-10:00 am, Eastern Standard Time The following Partners will introduce their Networks and be available to answer questions related to PCORnet activities and to discuss opportunities for collaboration: Elizabeth Cope NephCure Kidney Network for Patients with Nephrotic Syndrome Holly Peay The DuchenneConnect Patient-Report Registry Infrastructure Project … Continue reading Resource Center Office Hours: April 7

Grand Rounds: April 4

A Shared Forum of the NIH Health Care Systems Research Collaboratory and PCORnet Rethinking Clinical Research Speaker: Gregory E. Simon, MD, MPH NIH Collaboratory Demonstration Project PI Group Health Research Institute Topic: Defining Denominator Populations Within and Across Complex Health Systems Date: Friday, April 4, 2014, 1:00-2:00 p.m. ET Join the conversation on Twitter: @PCTGrandRounds  #pctGR Pragmatic Clinical … Continue reading Grand Rounds: April 4

Resource Center Office Hours: April 3

Web Conference Meeting Info: Thursday, April 3, 2014 ** Note Date change! Time: 11:00 am-12:00 (noon) pm, Eastern Standard Time Get better acquainted with our PCORnet partners and identify potential points of collaboration. The following Partners will introduce their Networks and be available to answer questions related to PCORnet activities and to discuss opportunities for collaboration: … Continue reading Resource Center Office Hours: April 3

Grand Rounds: March 28

A Shared Forum of the NIH HCS Collaboratory and PCORnet Rethinking Clinical Research Speaker: Janet Woodcock, MD Director, Center for Drug Evaluation and Research U.S. Food and Drug Administration (FDA) Topic: Why is the FDA interested in the Collaboratory and PCORnet? Join the conversation on Twitter: #pctGR / @Collaboratory1 and @PCORnetwork [pctGR=practical clinical trials grand … Continue reading Grand Rounds: March 28

In the News: Patient-Centered Clinical Research Networks – The Patients’ Role

NPC Now: Published on YouTube on Feb 26, 2014 Sarah Daugherty, PhD, MPH, senior program officer, comparative effectiveness research (CER) methods and infrastructure at the Patient-Centered Outcomes Research Institute (PCORI), highlights the important and practical role patients are expected to have in the Patient-Centered Clinical Research Networks (PCORnet) being developed to improve the nation’s capacity … Continue reading In the News: Patient-Centered Clinical Research Networks – The Patients’ Role

In the News: PLOS’ New Data Policy: Public Access to Data

PLOS Blogs | By Liz Silva  Posted: February 24, 2014 In an effort to increase access to this data, we are now revising our data-sharing policy for all PLOS journals: authors must make all data publicly available, without restriction, immediately upon publication of the article. Beginning March 3rd, 2014, all authors who submit to a PLOS journal will … Continue reading In the News: PLOS’ New Data Policy: Public Access to Data

In the News: PCORI at 3 Years — Progress, Lessons, and Plans

February 13, 2014 Joe Selby, MD, MPH, executive director of the Patient-Centered Outcomes Research Institute (PCORI), shares the progress and lessons learned since PCORI launched three years ago in a NEJM perspective piece published this week. PCORI has established distinctive pathways for funding and conducting practical research and a solid foundation of funded studies. The … Continue reading In the News: PCORI at 3 Years — Progress, Lessons, and Plans

In the News: J&J to allow access to clinical research through Yale open-data project

By Sabriya Rice, Modern Healthcare  Posted: January 30, 2014 – 3:00 pm ET Johnson & Johnson entered an agreement to share clinical trial data through the Yale School of Medicine’s Open Data Access (YODA) Project, which will serve as an independent body to review requests from investigators and physicians seeking access. The arrangement is the first … Continue reading In the News: J&J to allow access to clinical research through Yale open-data project

Resource Center Office Hours: March 24

Web Conference Meeting Info: Monday, March 24, 2014 Time: 1:00-2:00 pm, Eastern Standard Time New Format! We are using the  Office Hours web conference to provide opportunities for the PCORnet partners to get better acquainted and to identify potential points of collaboration. The following Partners will introduce their Networks and be available to answer questions … Continue reading Resource Center Office Hours: March 24

Grand Rounds: March 21

A Shared Forum of the NIH HCS Collaboratory and PCORnet Rethinking Clinical Research Speaker: Stephanie Startz Associate Director, Digital Strategy The Michael J. Fox Foundation Topic: Use of Social Media in Clinical Research Join the conversation on Twitter: #pctGR / @Collaboratory1 and @PCORnetwork [pctGR=practical clinical trials grand rounds] Date: Friday, March 21, 2014, 1:00-2:00 p.m. ET Meeting Info:  To … Continue reading Grand Rounds: March 21