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Influential Healthcare Publications Recognize PCORnet for Its Important Role in Driving Patient-Centered Research

As the National Patient-Centered Clinical Research Network (PCORnet), a PCORI initiative, continues to gain momentum as a model for patient-centered research, several notable publications are recognizing the Network’s innovation. Three recent publications are out that provide evidence of PCORnet’s increasing influence in the movement toward community-driven research. The first is a discussion paper released by … Continue reading Influential Healthcare Publications Recognize PCORnet for Its Important Role in Driving Patient-Centered Research

Interactive PCORI Workshops Provide Key Insights to PCORnet Researchers

The Patient-Centered Outcomes Research Institute (PCORI) is optimizing its health research funding process by connecting directly with applicants through interactive workshops designed to offer tips for engaging patients and developing competitive funding applications. PCORI, which is known across the research community for its innovative and ambitious National Patient-Centered Clinical Research Network (PCORnet), also uses its … Continue reading Interactive PCORI Workshops Provide Key Insights to PCORnet Researchers

PCORnet Executive Committee Chair and Council Co-Chair Leads NEST Coordinating Center

Rachael Fleurence, Ph.D, PCORI Program Director and PCORnet Executive Committee Chair and Council Co-Chair, has been selected to serve as Executive Director for the National Evaluation System for health Technology Coordinating Center (NESTcc). NESTcc was established by the Medical Device Innovation Consortium (MDIC) in September 2016 through an FDA grant. MDIC is a public-private partnership … Continue reading PCORnet Executive Committee Chair and Council Co-Chair Leads NEST Coordinating Center

PCORnet Members to Impact AMIA Joint Summits on Translational Science

Many PCORnet colleagues will be at the AMIA Joint Summits on Translational Science this week in San Francisco, CA.  The summits will foster interactions between three informatics communities: translational bioinformatics, clinical research informatics and informatics implementation. To make networking with your PCORnet colleagues easier, refer to this list of sessions featuring PCORnet leaders PCORnet-led Sessions … Continue reading PCORnet Members to Impact AMIA Joint Summits on Translational Science

People-Centered Research Foundation Established

The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors has agreed to provide up to $25.4 million in additional infrastructure-building funds to support the long-term sustainability of PCORnet through a newly incorporated People-Centered Research Foundation (PCRF), a nonprofit formed this month by PCORnet investigators to advance and support the network’s sustainability.  Visit the PCRF Website … Continue reading People-Centered Research Foundation Established

iConquerMS™ Members Revamp Recruiting Materials to Reflect Community Preferences

Author: Laura Kolaczkowski, Co-Principal Investigator of iConquer Multiple Sclerosis Patient-Powered Research Network (MS-PPRN). Multiple Sclerosis (MS) Awareness Week (March 5-11th) is a weeklong national effort to increase awareness of MS, and provides an opportunity to examine how asking and listening to communities of patients can improve how we make connections between people living with chronic … Continue reading iConquerMS™ Members Revamp Recruiting Materials to Reflect Community Preferences

Getting to the Heart of Patient Needs: PCORnet’s Health eHeart Alliance PPRN & PaTH CDRN Find New Ways of Managing & Preventing Cardiovascular Disease

The American Heart Association, the Centers for Disease Control (CDC) and the Heart Foundation all mark February as a month to boost awareness and promote research that brings patients and providers practical solutions for the nation’s leading cause of morbidity and mortality: cardiovascular disease. According to the CDC, someone in the U.S. has a heart … Continue reading Getting to the Heart of Patient Needs: PCORnet’s Health eHeart Alliance PPRN & PaTH CDRN Find New Ways of Managing & Preventing Cardiovascular Disease

PCORnet Partner Network Inspires Alzheimer’s National Summit and Catalyzes New Digital Tools for Alzheimer’s Research

The National Alzheimer’s & Dementia Patient & Caregiver-Powered Research Network (AD-PCPRN) recently helped shape a National Alzheimer’s Summit in Washington, DC. AD-PCPRN is one of 20 Patient-Powered Research Networks of the National Patient Centered Clinical Research Network (PCORnet), an initiative funded by the Patient Centered Outcomes Research Institute (PCORI). AD-PCPRN is harnessing the collaboration of … Continue reading PCORnet Partner Network Inspires Alzheimer’s National Summit and Catalyzes New Digital Tools for Alzheimer’s Research

PCORnet Announces 11 Collaborative Research Groups to Speed Insights to Patients

The National Patient Centered Clinical Research Network (PCORnet), a PCORI initiative, today announced the launch of 11 Collaborative Research Groups (CRGs) designed to catalyze new multi-network research. Each CRG team is composed of content experts from within the Network focused on generating engaging, high-priority research questions that will help patients and clinicians make informed healthcare … Continue reading PCORnet Announces 11 Collaborative Research Groups to Speed Insights to Patients

PCORnet Welcomes New Member to Research Committee

On Friday, December 16, the PCORnet Council, the main governing body of PCORnet, approved the slates for the Engagement and Research Committees, welcoming one new committee member and re-electing five others. Marleah Dean Kruzel, PHD, a steering committee member for the American BRCA Outcomes and Utilization of Testing Patient-Powered Research Network (ABOUT), has joined the … Continue reading PCORnet Welcomes New Member to Research Committee