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Early Registration Open for PCORI Annual Meeting

Early registration is now open for the PCORI Annual Meeting, which will take place Oct. 31- Nov. 2nd in Arlington, Va.  More than 1,000 members of the health care community will gather for this two-and-a-half day event which will include updates on how scientists, patients, caregivers, clinicians, payers, and others are working together to make … Continue reading Early Registration Open for PCORI Annual Meeting

The Power of Collaboration: A Glimpse Into PCORnet’s Commitment to Stakeholder Engagement

PCORnet, the National Patient-Centered Clinical Research Network, an initiative of the Patient-Centered Outcomes Research Institute (PCORI), has put stakeholder engagement, particularly research participants, at the heart of its infrastructure. Operating as an extension of PCORI’s mission to bring patient voices to the forefront of research, PCORnet seeks to integrate a collaborative spirit across every aspect … Continue reading The Power of Collaboration: A Glimpse Into PCORnet’s Commitment to Stakeholder Engagement

People-Centered Research Foundation Names Kathy Hudson Executive Director

The People-Centered Research Foundation (PCRF) announced today that Kathy L. Hudson, PhD, has joined the organization as executive director. Hudson most recently served as deputy director for Science, Outreach, and Policy at the National Institutes of Health (NIH). At the PCRF, she joins a team of national leaders in clinical research who established the nonprofit … Continue reading People-Centered Research Foundation Names Kathy Hudson Executive Director

Why Engage Patients at “Your Weight Matters”?

Author: Kimberly Holmquist, MPH, Research Project Manager for Kaiser Permanente Southern California (KPSC) Research & Evaluation, the Lead Site for Kaiser Permanente & Strategic Partners Patient Outcomes Research To Advance Learning (PORTAL) Network and Lead Site for PCORnet secondary aim for bariatric studies. Kimberly started her career in medical research with the Centers for Disease Control … Continue reading Why Engage Patients at “Your Weight Matters”?

A Monumental Step Toward Understanding and Diagnosing Prosopagnosia (Face Blindness)

Author: Christina Pressl, MD, Clinical Scholar and Investigator for New York City Clinical Data Research Network (NYC-CDRN), one of 13 Clinical Data Research Networks (CDRNs) funded by PCORI. Christina received her MD from the Medical University of Graz, Austria in 2009. She then spent the following three years of residency in Radiology at the General … Continue reading A Monumental Step Toward Understanding and Diagnosing Prosopagnosia (Face Blindness)

NESTcc Selects PCORnet Leaders for Inaugural Governing Committee

Several leaders from PCORnet, the National Patient-Centered Clinical Research Network, PCORI and the People-Centered Research Foundation (PCRF) have been selected to serve on the inaugural Governing Committee for the National Evaluation System for health Technology Coordinating Center (NESTcc), including: Naomi Aronson, PhD – Executive Director of Clinical Evaluation, Innovation, and Policy at the Blue Cross … Continue reading NESTcc Selects PCORnet Leaders for Inaugural Governing Committee

Let Your Voice Be Heard: MyPaTH Story Booth Empowers Communities to Share Their Stories

What makes a clinical study meaningful? For PCORnet, the National Patient-Centered Clinical Research Network, the answer is simple: meaningful research reflects the voice of communities, addressing questions and concerns that are relevant to the real world. PaTH, a PCORnet Clinical Data Research Network (CDRN) funded by PCORI, is making these voices more accessible with the … Continue reading Let Your Voice Be Heard: MyPaTH Story Booth Empowers Communities to Share Their Stories

PCORnet Infrastructure Helps DINE-CD Demonstration Study Avoid “Reinventing the Wheel”

Erin Gilroy, BS, was a Senior Research Coordinator in the Center for Clinical Epidemiology and Biostatistics at the University of Pennsylvania’s Perelman School of Medicine and Study Project Manager for the PCORnet DINE-CD Demonstration Study which began in March 2016. Gilroy is now attending nursing school. Most of us know the popular saying, “Don’t reinvent … Continue reading PCORnet Infrastructure Helps DINE-CD Demonstration Study Avoid “Reinventing the Wheel”

PCORnet Partners Highlighted Throughout AcademyHealth’s Annual Research Meeting

As the networks and studies within the National Patient-Centered Clinical Research Network, PCORnet, an initiative of the Patient-Centered Outcomes Research Institute (PCORI), continue to grow and mature, the impact of PCORnet itself is also growing. This growth was evident at AcademyHealth’s Annual Research Meeting (ARM) held June 25-27th in New Orleans where PCORnet leaders from … Continue reading PCORnet Partners Highlighted Throughout AcademyHealth’s Annual Research Meeting

REACHnet Research Featured at AcademyHealth’s Annual Research Meeting

Leaders from REACHnet, a PCORI-funded PCORnet CDRN based in Louisiana, took advantage of the HealthAcademy’s Annual Research Meeting (ARM) New Orleans location this year by participating in several panel discussions and presentations, including: A presentation during a session on Patient Voices in Research and Quality Improvement: “Engaging Stakeholders to Develop a Patient-Centered Research Agenda: Methods … Continue reading REACHnet Research Featured at AcademyHealth’s Annual Research Meeting