Rare Disease Day is a way to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The campaign targets primarily the general public and also seeks to educate policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases. … Continue reading Rare Disease Day – February 28
Call for Abstracts Submission Deadline: February 12, 2015 NIH Science of Team Science (SciTS) 2015 Conference June 2-5, 2015 NIH Natcher Conference Center, Bethesda MD The NIH Science of Team Science (SciTS) 2015 Conference will be held June 2-5, 2015, at the National Institutes of Health main campus in Bethesda, Maryland. SciTS is a rapidly growing … Continue reading Call for Abstracts: NIH Science of Team Science 2015 Conference
Getting to Know PCORI: From Application to Closeout February 19-20, 2015 Sheraton North Houston at George Bush Intercontinental 15700 John F. Kennedy Boulevard Houston, TX 77032 PCORI is hosting a free two-day interactive workshop to provide applicants with the tools and strategies to develop that winning application. This interactive workshop—led by our expert staff—will offer … Continue reading Getting to Know PCORI: From Application to Closeout – February 19-20
Web Conference Meeting Info: Wednesday, February 18, 2015 Time: 12:00-1:00 pm, Eastern Standard Time Hosted by the PCORnet DSSNI Task Force Agenda: Introduction by Lesley Curtis, PhD, DSSNI Task Force Co-lead Presentation by Olivier Bodenreider, MD, PhD, National Library of Medicine: Overview of RxNorm: Terminology, applications, and tools Facilitated Discussion (moderated by Lesley Curtis and … Continue reading Resource Center Office Hours: February 18 – Olivier Bodenreider, MD, PhD
The Department of Health and Human Services and the National Institutes of Health (NIH) are releasing for public comment two proposals to increase the transparency of clinical trials via information submitted to ClinicalTrials.gov, a publicly accessible database operated by the National Library of Medicine (NLM), part of the NIH.
In this recent Institute of Medicine report, 17 domains were identified by a committee (featuring some PCORnet members, including Eric Larson from the Coordinating Center and Chris Forrest from PEDSnet). These domains were considered to be good candidates for inclusion in Electronic Health Records (EHRs). This report highlights 12 measures related to 11 of the initial domains and considers the implications of incorporating them into all EHRs.
The National Diabetes Education Program (NDEP) has recently published Guiding Principles for the Care of People With or at Risk for Diabetes …highlighting a set of 10 guiding principles focused on areas of agreement for diabetes care that could be clinically useful in diabetes management and prevention.
These are aimed at assisting with identification and management of the disease, self-management support for patients, physical activity and blood glucose control, among other topics. More than a dozen federal agencies and professional organizations support the document.