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Precision Medicine Initiative Public Workshop – May 28-29

Precision Medicine Initiative (PMI) Working Group of the Advisory Committee to the NIH Director (ACD) Digital Health Data in a Million-Person Precision Medicine Initiative Cohort Thursday, May 28 – 8:30 a.m.-5:30 p.m. CT Friday, May 29 – 8:30 a.m.-12:30 p.m. CT Videocast: Precision Medicine Public Workshop The workshop will focus on solutions to challenges in … Continue reading Precision Medicine Initiative Public Workshop – May 28-29

Best Practice Session Sharing: Chunhua Weng, PhD – May 27

Architecture-Specific Considerations and Methods for Data Quality Assessment in Collaborative Clinical Data Research Networks Presenter: Chunhua Weng, PhD Associate Professor, Department of Biomedical Informatics Columbia University, New York, NY Wednesday, May 27, 2015 2:00-3:00 p.m. ET Hosted by the PCORnet DSSNI Task Force Agenda: Introduction by Lesley Curtis, PhD, DSSNI Co-chair Topic: Architecture-Specific Considerations and … Continue reading Best Practice Session Sharing: Chunhua Weng, PhD – May 27

Best Practice Session Sharing: Matthew Roe, MD – May 20

Clinician engagement in pragmatic research: From evolving roles and responsibilities to emerging opportunities for physicians and others! Presenter: Matthew Roe, MD Duke University Medical Center, Duke Clinical Research Institute Wednesday, May 20, 2015 1:00-2:00 p.m. ET Note: This topic is presented twice (May 20 and May 21) to accommodate the availability of audience members. Attendance … Continue reading Best Practice Session Sharing: Matthew Roe, MD – May 20

PCORI Awards $14 Million to Determine Best Aspirin Dose to Protect Patients with Heart Disease

The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved a three-year, $14 million clinical trial designed to determine the best dose of aspirin to use to prevent heart attacks and strokes in people with heart disease.

The study, called ADAPTABLE (Aspirin Dosing: A Patient-centric Trial Assessing Benefits and Long-term Effectiveness), will compare the benefits and harms of a low- and regular-strength daily dose of aspirin in patients diagnosed with heart disease.
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Best Practice Session Sharing: Brandon Welch, MS, PhD and Jihad Obeid, MD – May 12

A telemedicine platform for remote electronic informed consent Presenters: Brandon M. Welch, MS, PhD and Jihad Obeid, MD Tuesday, May 12, 2015 1:00-2:00 p.m. ET Agenda: Introduction by Rebecca Wilgus, MSN Topic: A telemedicine platform for remote electronic informed consent Facilitated Discussion (moderated by Rebecca Wilgus, MSN) Webinar information: Phone: 1-855-244-8681 (toll-free) or 1-650-479-3207 (toll) … Continue reading Best Practice Session Sharing: Brandon Welch, MS, PhD and Jihad Obeid, MD – May 12

Best Practice Session Sharing: Thomas W. Carton, PhD, MS – May 6

PCORnet Best Practice Session Sharing Presenter: Thomas W. Carton, PhD, MS Wednesday, May 6, 2015 11:00 a.m.-12:00 p.m. ET Hosted by the PCORnet DSSNI Task Force Agenda: Introduction by by Keith Marsolo, PhD, DSSNI Co-Chair Topic: “Pragmatic Trial App Suite: Supporting patient engagement, trial recruitment and more” Facilitated Discussion (moderated by Keith Marsolo, PhD) Webinar … Continue reading Best Practice Session Sharing: Thomas W. Carton, PhD, MS – May 6

Best Practice Sharing Session: Abel Kho, MD – April 29

PCORnet Best Practice Session Sharing Presenter: Abel Kho, MD Wednesday, April 29, 2015 11:00 a.m.-12:00 p.m. ET Hosted by the PCORnet DSSNI Task Force Agenda: Introduction by by Keith Marsolo, PhD, DSSNI Co-Chair Topic: “Design and development of an operational privacy protecting record linkage tool” Facilitated Discussion (moderated by Keith Marsolo, PhD) Webinar information: Phone: … Continue reading Best Practice Sharing Session: Abel Kho, MD – April 29

Genetic Alliance to Coordinate PCORI’s Patient Powered Research Networks

Genetic Alliance has been awarded the contract to lead the PCORnet Coordinating Center effort to leverage the value of the Patient Powered Research Networks (PPRNs). The PPRNs are a unique aspect of PCORnet—an initiative funded by PCORI to harness the power of health information to conduct research faster, at lower cost, and with greater power and focus on patient needs and concerns.

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UPenn: Statistical Issues Arising in Pragmatic Clinical Trials – April 15

PCORI is sponsoring, through an Engagement Award, the University of Pennsylvania’s Center for Clinical Epidemiology and Biostatistics 8th Annual Conference on Statistical Issues in Clinical Trials on April 15th. This year’s conference is focused on pragmatic trials. Information about the program and the conference can be found here. The conference is highly germane to PCORI, … Continue reading UPenn: Statistical Issues Arising in Pragmatic Clinical Trials – April 15