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PCORI Awards $9 Million for Research on Weight Loss Surgery and Childhood Obesity

The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved $9 million to fund two research studies focused on the treatment and prevention of obesity in children and adults. The research teams will use the partnerships and secure data resources of PCORnet, the National Patient-Centered Research Network, to fill key evidence gaps about this important health issue.
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Leveraging PCORnet and Health Data to Make Gains against Obesity

Date: August 18, 2015
Authors: Rachael Fleurence, PhD, Program Director, CER Methods and Infrastructure, PCORI and Joe Selby, MD, MPH, Executive Director, PCORI

Obesity is at epidemic levels in the United States. About 30 percent of American adults are considered obese, with 5 percent severely obese, and among adolescents (ages 12-19), 20 percent are obese.
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PCORI Board Approves $142.5 Million to Fund Expansion Phase of PCORnet, the National Patient-Centered Clinical Research Network

The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved nearly $142.5 million to support the ongoing development and expansion of an ambitious new resource for health research known as PCORnet, the National Patient-Centered Clinical Research Network.
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PCORnet: Progress, Challenges, and Opportunities Ahead

Date: July 21, 2015
Authors: Rachael Fleurence, PhD, Program Director, CER Methods and Infrastructure, PCORI and Joe Selby, MD, MPH, Executive Director, PCORI

When PCORI first proposed developing a national clinical research collaborative and community that would harness the power of partnerships and health data to improve patient outcomes, we knew we’d set out on an unprecedented and exciting path.
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ADAPTABLE Study protocol posted for stakeholder review

Review and provide comments on the ADAPTABLE study research protocol.  ADAPTABLE is  the first demonstration project to be conducted through PCORnet.  ADAPTABLE is based on a model of sharing knowledge and provides a unique opportunity to engage and collaborate with physicians, patients, patient representatives, investigators, research study team members, and support staff.

PCORnet focuses on improving capacity to conduct CER through research network

Biosample Buzz; June 2015 As part of PCORnet, task forces were established to support and disseminate best practices. The goal of the Biorepository Task Force is to develop and foster systematic approaches that support a regulatory-compliant, comprehensive, and sustainable Network-wide approach to biorepositories to serve PCORnet research endeavors. The task force includes over 40 members, … Continue reading PCORnet focuses on improving capacity to conduct CER through research network

Precision Medicine Initiative Public Workshop – May 28-29

Precision Medicine Initiative (PMI) Working Group of the Advisory Committee to the NIH Director (ACD) Digital Health Data in a Million-Person Precision Medicine Initiative Cohort Thursday, May 28 – 8:30 a.m.-5:30 p.m. CT Friday, May 29 – 8:30 a.m.-12:30 p.m. CT Videocast: Precision Medicine Public Workshop The workshop will focus on solutions to challenges in … Continue reading Precision Medicine Initiative Public Workshop – May 28-29

Best Practice Session Sharing: Chunhua Weng, PhD – May 27

Architecture-Specific Considerations and Methods for Data Quality Assessment in Collaborative Clinical Data Research Networks Presenter: Chunhua Weng, PhD Associate Professor, Department of Biomedical Informatics Columbia University, New York, NY Wednesday, May 27, 2015 2:00-3:00 p.m. ET Hosted by the PCORnet DSSNI Task Force Agenda: Introduction by Lesley Curtis, PhD, DSSNI Co-chair Topic: Architecture-Specific Considerations and … Continue reading Best Practice Session Sharing: Chunhua Weng, PhD – May 27

Best Practice Session Sharing: Matthew Roe, MD – May 20

Clinician engagement in pragmatic research: From evolving roles and responsibilities to emerging opportunities for physicians and others! Presenter: Matthew Roe, MD Duke University Medical Center, Duke Clinical Research Institute Wednesday, May 20, 2015 1:00-2:00 p.m. ET Note: This topic is presented twice (May 20 and May 21) to accommodate the availability of audience members. Attendance … Continue reading Best Practice Session Sharing: Matthew Roe, MD – May 20