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PCORnet Partner Network Inspires Alzheimer’s National Summit and Catalyzes New Digital Tools for Alzheimer’s Research

The National Alzheimer’s & Dementia Patient & Caregiver-Powered Research Network (AD-PCPRN) recently helped shape a National Alzheimer’s Summit in Washington, DC. AD-PCPRN is one of 20 Patient-Powered Research Networks of the National Patient Centered Clinical Research Network (PCORnet), an initiative funded by the Patient Centered Outcomes Research Institute (PCORI). AD-PCPRN is harnessing the collaboration of … Continue reading PCORnet Partner Network Inspires Alzheimer’s National Summit and Catalyzes New Digital Tools for Alzheimer’s Research

PCORnet Announces 11 Collaborative Research Groups to Speed Insights to Patients

The National Patient Centered Clinical Research Network (PCORnet), a PCORI initiative, today announced the launch of 11 Collaborative Research Groups (CRGs) designed to catalyze new multi-network research. Each CRG team is composed of content experts from within the Network focused on generating engaging, high-priority research questions that will help patients and clinicians make informed healthcare … Continue reading PCORnet Announces 11 Collaborative Research Groups to Speed Insights to Patients

PCORnet Welcomes New Member to Research Committee

On Friday, December 16, the PCORnet Council, the main governing body of PCORnet, approved the slates for the Engagement and Research Committees, welcoming one new committee member and re-electing five others. Marleah Dean Kruzel, PHD, a steering committee member for the American BRCA Outcomes and Utilization of Testing Patient-Powered Research Network (ABOUT), has joined the … Continue reading PCORnet Welcomes New Member to Research Committee

PCORnet-Designated Flu Dosing Study Pilots SMART IRB Approach

Flu season is upon us, and the The National Institute of Health (NIH)-funded INVESTED study is examining adults with heart disease who get infected with influenza, more commonly known as “the flu,” who are more likely to be at risk for heart attacks and hospitalization due to heart failure. Conducted through the National Patient-Centered Clinical … Continue reading PCORnet-Designated Flu Dosing Study Pilots SMART IRB Approach

PCORnet Commons Offers Collaborative Space for Conversation & Ideas

The PCORnet Commons website is now live! This new online space was created collaboratively with insight and feedback from across the PCORnet community with the goal of providing people with the opportunities to increase collaboration, efficiency, and people-centeredness in clinical research. The PCORnet Commons is a space for you to share resources, engage in dialogue, grow together, and learn from one another. On … Continue reading PCORnet Commons Offers Collaborative Space for Conversation & Ideas

PCORnet Community Rallies to Launch New Version of Common Data Model

PCORnet, the National Patient-Centered Clinical Research Network, is pleased to announce the release of the newest iteration of its Common Data Model (CDM), CDM v3.1. Initially released in three deployments between 2014 and 2015, the CDM is a way of organizing PCORnet’s broad and diverse data into a standard structure to enable a more rapid … Continue reading PCORnet Community Rallies to Launch New Version of Common Data Model

PCORnet’s Partner Networks Tackle Crohn’s, Colitis

Crohn’s and Colitis Awareness Week ends today, making this a great time to explore PCORnet’s efforts to tackle these two widespread forms of inflammatory bowel diseases (IBD), both of which are incurable and invisible. Two of PCORnet’s partner networks, the ImproveCareNow Patient Powered ResearchNetwork (PPRN) and the Crohn’s & Colitis Foundation of America (CCFA) PPRN, … Continue reading PCORnet’s Partner Networks Tackle Crohn’s, Colitis

PCORI Annual Meeting Sheds Light on PCORnet’s Role in Furthering Patient-Centered Research

Participant morale was high at the Patient-Centered Outcomes Research Institute (PCORI) Annual Meeting, which took place November 17-19, 2016 at the Gaylord National Resort and Convention Center in National Harbor, Maryland. Over the course of three informative days, over 300 patients and patient advocates, 200 clinicians, 400 researchers and other key stakeholders from over 100 … Continue reading PCORI Annual Meeting Sheds Light on PCORnet’s Role in Furthering Patient-Centered Research

Determining the Path Forward for ADAPTABLE and Pragmatic Research

Patient leaders, study investigators, and operations and research staff gathered recently to discuss ideas and strategies for making the ADAPTABLE (Aspirin Dosing: A Patient-centric Trial Assessing Benefits and Long-Term Effectiveness) study a success. Read this summary for a snapshot of the engaging discussions and lessons learned from the kick-off meeting. As a PCORI-funded PCORnet demonstration … Continue reading Determining the Path Forward for ADAPTABLE and Pragmatic Research

Guest Blogs Generate Buzz in Advance of PCORI Annual Meeting

The Patient-Centered Outcomes Research Institute (PCORI) Annual Meeting on November 17-19, 2016 is approaching quickly, and two of its scheduled speakers are building momentum for the event with the publication of guest blogs detailing their clinical research experience. Although both blogs offer a unique perspective, both describe their authors’ personal passion to further PCORI’s mission … Continue reading Guest Blogs Generate Buzz in Advance of PCORI Annual Meeting