Patient-centered SCAlable National Network for Effectiveness Research (pSCANNER)

Details and Information

Visit the pSCANNER Website

Organization: University of California, San Diego (UCSD)

Contact: pscanner@ucsd.edu

Principal Investigator: Lucila Ohno-Machado, MD, MBA, PhD

Co-Principal Investigator(s): Michael Matheny, MD, MS, MPH, Daniella Meeker, PhD, and Lisa Schilling, MD, MSPH

About pSCANNER

Launched in April 2014 and funded by the Patient-Centered Outcomes Research Institute (PCORI), the Patient-centered SCAlable National Network for Effectiveness Research (pSCANNER) is a stakeholder-governed federated network whose mission is to make health data more accessible and usable for the generation of scientific evidence that patients, clinicians, and other stakeholders together use to make more informed health decisions. pSCANNER overcomes traditional obstacles to data sharing and analysis by using a scalable, distributed network infrastructure with novel privacy-preserving methodologies. These methodologies enable data partners to share only summary statistics, yet allow researchers to receive the same results that would typically require centralized data analysis. pSCANNER is a network of 14 health systems and community clinics covering over 24 million patients. Patients, patient advocates, researchers, and clinicians participate in every aspect of pSCANNER decision-making and governance, including defining operational policies that respect patient preferences for data sharing and transparency. Each pSCANNER partner site can opt to or decline participation in a proposed study based on how the study goals align with the site’s overall mission, patient population, and operational feasibility.

Initial Network Use-Case

  • High Prevalence Cohort Clinical Condition: Heart failure
  • Rare Disorder Clinical Condition: Kawasaki disease
  • Populations Covered by Initial Focus: Underserved, urban, rare disorders, children, geriatric, minority, disabled
Last updated on August 30, 2016