Details and Information
Visit the PaTH Website
Organization: University of Pittsburgh
Principal Investigator: Kathleen McTigue, MD, MPH, MS
PaTH is a Clinical Data Research Network comprised of Geisinger Health System, Johns Hopkins University, Johns Hopkins Health System, Penn State College of Medicine, Penn State Milton S. Hershey Medical Center, Temple Health System, Lewis Katz School of Medicine at Temple University, the University of Pittsburgh, UPMC and UPMC Health Plan, the University of Utah, and University of Utah Health Care.
PaTH’s mission is to utilize patient-empowered research to address questions and concerns that matter most to the communities we serve in order to make more informed health decisions. We aim to do so by building on our success in (1) linking electronic health record (EHR) data across our six diverse health care systems while ensuring patient privacy; (2) engaging patients and clinicians to identify critical research questions and participate in research; and (3) developing convenient survey methods to let patients share their perspectives on health topics with their health care teams. We have developed key tools to increase stakeholder engagement and patient participation in PaTH research. These innovations include the MyPaTH Story Booth, in which participants can audio or record a story about their experiences in health care; our online crowdsourcing tool, which will allow visitors to our website to quickly and easily share their opinion on a health care topic; PaTH Finder, the Network-wide newsletter that shares information such as research updates and ongoing studies from PaTH sites; and a page dedicated to our patient and community stakeholders on the PaTH website.
2017 Project Poster : The MyPaTH Story Booth: Using Patient Stories to Promote People-Centered Research Questions & Stakeholder Engagement
Initial Network Use-Case
- High Prevalence Cohort Clinical Condition: Atrial fibrillation
- Rare Disorder Clinical Condition: Idiopathic pulmonary fibrosis
- Populations Covered by Initial Focus: Underserved, rural, urban, rare disorders, children, minority, other vulnerable populations