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PCORI Board Approves $12.5 Million for PCORnet Patient-Powered 
Research Network Demonstration Projects

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WASHINGTON, DC (Mar. 22, 2016) — The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved $12.5 million for five Patient-Powered Research Network (PPRN) demonstration projects.

Additionally, the Board authorized providing up to $22 million to study ways to improve treatment of chronic low back pain, a leading cause of disability and one of the most frequent reasons adults seek medical care.
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Parent Champion Perspective on Engagement in Research

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Douglas Lunsford, a champion of obesity research, describes what led him to become an investigator for the PCORnet Antibiotic Use in Infants and Obesity Study in a PCORI blog.  In an accompanying video,  Mr. Lunsford’s states, “The more we as people interact with the medical community and the more they interact with us, it eliminates a … Continue reading Parent Champion Perspective on Engagement in Research

Advancing Research by Giving Patients Greater Access to Their Health Data

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Read more about Joe Selby and Sharon Terry’s participation in the Precision Medicine Initiative or PMI in a recent PCORI blog. PMI seeks to gather a range of health information—including genetic data, bio-specimens, clinical records, and information reported by patients themselves—from more than 1 million people. Its goal is to create a research resource that … Continue reading Advancing Research by Giving Patients Greater Access to Their Health Data

PCORI Announces PCORnet Partner Networks’ Pledge to Facilitate Patients’ Access to Their EHR Data

WASHINGTON, DC (Feb. 25, 2015) — Today at the Precision Medicine Initiative Summit at the White House, Joe Selby, MD, MPH, Executive Director of the Patient-Centered Outcomes Research Institute (PCORI), announced an initiative to enable individuals to access data in their electronic health records (EHRs) and share it for research that could improve care for their conditions.
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PCORI Board Approves $70 Million for New Patient-Centered Research Studies

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WASHINGTON, DC (Jan. 26, 2016) — The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved $70 million for nine new patient-centered research projects focused on conditions ranging from ductal carcinoma in situ (DCIS), a type of very early-stage, localized breast cancer, to diabetes, chronic lung disease and migraines. With these latest awards, PCORI has now approved or awarded more than $1.2 billion in research funding to date.
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PCORnet: Achievements and Plans on the Road to Transforming Health Research

Two years ago, PCORI began an ambitious journey to find a faster, less expensive, more powerful way to conduct comparative clinical effectiveness research that addresses the real-world needs of patients and those who care for them. Link to the full blog post.
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PCORnet Names Chairs of Data, Engagement, and Research Committees

The PCORnet Council, the main governing body of PCORnet, the National Patient-Centered Clinical Research Network, has approved three individuals to serve as the first chairs of the network’s new Data, Engagement, and Research Committees.
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Researchers Say Their Path To Better Health Starts With Patients’ Input

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In an article in Kaiser Health News, Guy Gugliotta discusses how PCORI as an independent organization charged with bringing health care professionals and patients together in cooperative research ventures to find the best treatments for ailments ranging from diabetes to depression, and last month opened the second phase of a program (PCORnet) to create research networks covering specific diseases and involving millions of patients across the country.
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Spotlight on a Patient-Powered Research Network

In its September newsletter, the patient advocacy group Facing Our Risk of Cancer Empowered (FORCE) highlights its participation in ABOUT (American BRCA* Outcomes and Utilization of Testing). ABOUT is one of the Patient-Powered Research Networks (PPRNs) that are an important part of PCORnet, the National Patient-Centered Clinical Research Network, which PCORI is developing.
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NIH Health Care Systems Research Collaboratory offers new perspectives on clinical research

September 15, 2015 – A special series of articles addressing the ethical and regulatory challenges to pragmatic clinical trials appears this week on the website of the journal Clinical Trials. The 12 articles were sponsored by the NIH Health Care Systems Research Collaboratory with additional support from the Patient-Centered Outcomes Research Institute, and include authors … Continue reading NIH Health Care Systems Research Collaboratory offers new perspectives on clinical research