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PCORI Marks Milestones & Highlights PCORnet’s Progress

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On PCORI’s sixth anniversary, Executive Director Joe V. Selby, MD, MPH, reflects on its record of achievement and growing influence in a PCORI Guest Blog. PCORI has now approved more than $1.5 billion to fund 551 comparative clinical effectiveness research and related projects. The past year has seen PCORI continue its stakeholder-guided shift to funding … Continue reading PCORI Marks Milestones & Highlights PCORnet’s Progress

Two PCORnet Colleagues Named Finalists in Health 2.0 Global Retrospective Awards

The premier organization for showcasing and catalyzing health technology, Health 2.0, has reinforced PCORnet’s position at the forefront of health innovation by selecting two of our colleagues as finalists for its Global Retrospective Awards. Sharon Terry, co-principal investigator, PCORnet Coordinating Center and principal investigator, Community-Engaged Network for All (CENA) Patient Powered Research Network (PPRN) and … Continue reading Two PCORnet Colleagues Named Finalists in Health 2.0 Global Retrospective Awards

Research for the Rest of Us: Building Trustworthiness in PCORnet Public Webinar Sheds Light on Research Needs of Underserved Communities

People-centricity was front and center during the recent Building Trustworthiness in PCORnet public webinar, which took place on September 16, 2016. Similar to PCORnet’s Building Trustworthiness inaugural event in March 2016, the webinar was an opportunity to foster broad and rich discussions by listening deeply to community experts as they provide actionable insights on how … Continue reading Research for the Rest of Us: Building Trustworthiness in PCORnet Public Webinar Sheds Light on Research Needs of Underserved Communities

PCORI Spotlights PCORnet’s Obesity Focus for National Childhood Obesity Awareness Month

In observance of National Childhood Obesity Awareness Month, the Patient-Centered Outcomes Research Institute (PCORI) has authored a blog that highlights PEDSnet, a partner network of the National Patient-Centered Clinical Research Network, PCORnet, that has access to data from 5.1 million children. PEDSnet aims to find ways to provide the best medical care and best outcomes for children, and … Continue reading PCORI Spotlights PCORnet’s Obesity Focus for National Childhood Obesity Awareness Month

PCORnet Colleagues Share Insights to Enhance Drug Review at FDA’s PDUFA Public Meeting

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Dr. Adrian Hernandez and Sharon Terry, co-principal investigators, PCORnet Coordinating Center, attended the U.S. Food and Drug Administration (FDA) Prescription Drug User Fee Act (PDUFA) Reauthorization Public Meeting on August 15, 2016. In alignment with the meeting’s goal to solicit public feedback on the agreement forged between FDA and stakeholders to evolve the PDUFA program to make the drug review process more efficient, Hernandez and Terry voiced their support of the agreement’s efforts toward patient inclusion, real-world evidence use, and rare disease drug development.
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PCORI Announces Progress Toward PCORnet’s White House Cancer Moonshot Commitments

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The Patient-Centered Outcomes Research Institute (PCORI) this week issued an update to the White House outlining progress made by its National Patient-Centered Clinical Research Network (PCORnet) toward its commitments to the Administration’s “Moonshot” initiative to accelerate cancer research.
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PCORnet Advocate Calls for Patients to Have a Louder Voice in Medical Research

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Neely Williams, patient co-investigator for PCORnet’s Mid-South Clinical Data Research Network, was featured in The Tennessean on Sunday, August 7, 2016 sharing her perspective on why patients need a louder voice in medical research.
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PCORI Guest Blog Explores PCORnet’s Multiple Sclerosis Research Network Built on Patient Input

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PCORnet’s Multiple Sclerosis Patient-Powered Research Network, iConquerMS, was recently featured in a PCORI Guest Blog titled “Multiple Sclerosis Research Network Builds on Patient Input,” authored jointly by the PPRN’s Co-PIs, Laura Kolaczkowski and Robert McBurney.
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PCORnet Features New Video and News from Partner Network, ImproveCareNow

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PCORnet invites you to learn more about our partner network, ImproveCareNow, by watching our latest video featuring Dr. Peter Margolis, Principle Investigator for ImproveCareNow. The Network is transforming care, health and costs for all children and youth with Crohn’s disease and ulcerative colitis (collectively known as Inflammatory Bowel Disease or IBD).
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Use of Electronic Health Records, Patient Reported Outcomes, and the Common Data Model to Transform Clinical Trials

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“PCORI is investing over $300 million into a clinical research network that will unite patients, clinicians, health systems, and EHRs,” says Dr. Adrian Hernandez, associate director of the Duke Clinical Research Institute. “The network itself has medical information and data on over 100 million subjects, and the patient EHRs are mapped to the PCORnet Common Data Model (CDM), which essentially organizes data into a standard structure.” ADAPTABLE will be the first pragmatic clinical trial to use the network. The trial will select patients via their EHRs, reach out to them electronically, consent them electronically, and then follow up with them electronically.
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