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PCORnet’s PEDSnet CDRN Longitudinal Study of Data Quality Published in Journal of American Medical Informatics Association

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Data quality is a crucial consideration when leveraging a Clinical Data Research Network (CDRN) to conduct large-scale research. The PEDSnet CDRN is helping to validate the utility of CDRN data with a study featuring an in-depth analysis of its data quality that was recently featured in the Journal of American Medical Informatics Association (JAMIA). PEDSnet … Continue reading PCORnet’s PEDSnet CDRN Longitudinal Study of Data Quality Published in Journal of American Medical Informatics Association

Health Datapalooza Conference Session Highlights Patient Roles in PCORnet

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When Heather Siefers visits her doctor to discuss her Multiple Sclerosis (MS), her doctor will tell her about the data from her lab tests and measures such as her liver function, blood pressure and weight. However, Siefers asks: shouldn’t data on quality of life indicators be captured alongside clinical data? She is also interested in … Continue reading Health Datapalooza Conference Session Highlights Patient Roles in PCORnet

PCORnet Releases Refreshed Data and Expanded Conditions of Interest

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The National Patient-Centered Clinical Research Network, PCORnet, today released a refreshed view of its data that sheds light on more recent patient encounters than was previously available and includes an expanded list of conditions of interest. Founded in 2014 as an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI), PCORnet aims to speed the … Continue reading PCORnet Releases Refreshed Data and Expanded Conditions of Interest

Influential Healthcare Publications Recognize PCORnet for Its Important Role in Driving Patient-Centered Research

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As the National Patient-Centered Clinical Research Network (PCORnet), a PCORI initiative, continues to gain momentum as a model for patient-centered research, several notable publications are recognizing the Network’s innovation. Three recent publications are out that provide evidence of PCORnet’s increasing influence in the movement toward community-driven research. The first is a discussion paper released by … Continue reading Influential Healthcare Publications Recognize PCORnet for Its Important Role in Driving Patient-Centered Research

Interactive PCORI Workshops Provide Key Insights to PCORnet Researchers

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The Patient-Centered Outcomes Research Institute (PCORI) is optimizing its health research funding process by connecting directly with applicants through interactive workshops designed to offer tips for engaging patients and developing competitive funding applications. PCORI, which is known across the research community for its innovative and ambitious National Patient-Centered Clinical Research Network (PCORnet), also uses its … Continue reading Interactive PCORI Workshops Provide Key Insights to PCORnet Researchers

PCORnet Executive Committee Chair and Council Co-Chair Leads NEST Coordinating Center

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Rachael Fleurence, Ph.D, PCORI Program Director and PCORnet Executive Committee Chair and Council Co-Chair, has been selected to serve as Executive Director for the National Evaluation System for health Technology Coordinating Center (NESTcc). NESTcc was established by the Medical Device Innovation Consortium (MDIC) in September 2016 through an FDA grant. MDIC is a public-private partnership … Continue reading PCORnet Executive Committee Chair and Council Co-Chair Leads NEST Coordinating Center

PCORnet Members to Impact AMIA Joint Summits on Translational Science

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Many PCORnet colleagues will be at the AMIA Joint Summits on Translational Science this week in San Francisco, CA.  The summits will foster interactions between three informatics communities: translational bioinformatics, clinical research informatics and informatics implementation. To make networking with your PCORnet colleagues easier, refer to this list of sessions featuring PCORnet leaders PCORnet-led Sessions … Continue reading PCORnet Members to Impact AMIA Joint Summits on Translational Science

People-Centered Research Foundation Established

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The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors has agreed to provide up to $25.4 million in additional infrastructure-building funds to support the long-term sustainability of PCORnet through a newly incorporated People-Centered Research Foundation (PCRF), a nonprofit formed this month by PCORnet investigators to advance and support the network’s sustainability.  Visit the PCRF Website … Continue reading People-Centered Research Foundation Established

Getting to the Heart of Patient Needs: PCORnet’s Health eHeart Alliance PPRN & PaTH CDRN Find New Ways of Managing & Preventing Cardiovascular Disease

The American Heart Association, the Centers for Disease Control (CDC) and the Heart Foundation all mark February as a month to boost awareness and promote research that brings patients and providers practical solutions for the nation’s leading cause of morbidity and mortality: cardiovascular disease. According to the CDC, someone in the U.S. has a heart … Continue reading Getting to the Heart of Patient Needs: PCORnet’s Health eHeart Alliance PPRN & PaTH CDRN Find New Ways of Managing & Preventing Cardiovascular Disease

PCORnet Partner Network Inspires Alzheimer’s National Summit and Catalyzes New Digital Tools for Alzheimer’s Research

The National Alzheimer’s & Dementia Patient & Caregiver-Powered Research Network (AD-PCPRN) recently helped shape a National Alzheimer’s Summit in Washington, DC. AD-PCPRN is one of 20 Patient-Powered Research Networks of the National Patient Centered Clinical Research Network (PCORnet), an initiative funded by the Patient Centered Outcomes Research Institute (PCORI). AD-PCPRN is harnessing the collaboration of … Continue reading PCORnet Partner Network Inspires Alzheimer’s National Summit and Catalyzes New Digital Tools for Alzheimer’s Research