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NESTcc Selects PCORnet Leaders for Inaugural Governing Committee

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Several leaders from PCORnet, the National Patient-Centered Clinical Research Network, PCORI and the People-Centered Research Foundation (PCRF) have been selected to serve on the inaugural Governing Committee for the National Evaluation System for health Technology Coordinating Center (NESTcc), including: Naomi Aronson, PhD – Executive Director of Clinical Evaluation, Innovation, and Policy at the Blue Cross … Continue reading NESTcc Selects PCORnet Leaders for Inaugural Governing Committee

Let Your Voice Be Heard: MyPaTH Story Booth Empowers Communities to Share Their Stories

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What makes a clinical study meaningful? For PCORnet, the National Patient-Centered Clinical Research Network, the answer is simple: meaningful research reflects the voice of communities, addressing questions and concerns that are relevant to the real world. PaTH, a PCORnet Clinical Data Research Network (CDRN) funded by PCORI, is making these voices more accessible with the … Continue reading Let Your Voice Be Heard: MyPaTH Story Booth Empowers Communities to Share Their Stories

PCORnet Partners Highlighted Throughout AcademyHealth’s Annual Research Meeting

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As the networks and studies within the National Patient-Centered Clinical Research Network, PCORnet, an initiative of the Patient-Centered Outcomes Research Institute (PCORI), continue to grow and mature, the impact of PCORnet itself is also growing. This growth was evident at AcademyHealth’s Annual Research Meeting (ARM) held June 25-27th in New Orleans where PCORnet leaders from … Continue reading PCORnet Partners Highlighted Throughout AcademyHealth’s Annual Research Meeting

REACHnet Research Featured at AcademyHealth’s Annual Research Meeting

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Leaders from REACHnet, a PCORI-funded PCORnet CDRN based in Louisiana, took advantage of the HealthAcademy’s Annual Research Meeting (ARM) New Orleans location this year by participating in several panel discussions and presentations, including: A presentation during a session on Patient Voices in Research and Quality Improvement: “Engaging Stakeholders to Develop a Patient-Centered Research Agenda: Methods … Continue reading REACHnet Research Featured at AcademyHealth’s Annual Research Meeting

PCORnet Highlighted in Recent Publications

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PCORnet, the National Patient-Centered Clinical Research Network, a PCORI initiative, was recently highlighted in two articles that underscore its increasing influence as a leader in the movement toward patient-centered research. The first was authored by PCORnet’s Patient Outcomes Research to Advance Learning (PORTAL) Clinical Data Research Network (CDRN) and published in Obesity. It explores the … Continue reading PCORnet Highlighted in Recent Publications

PCORnet Partner Networks Collaborate with Federal Agencies to Evaluate Effects of Health Policy on Diabetes Outcomes

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Do you know somebody affected by diabetes? With more than 29 million Americans suffering from Type 1 or Type 2 diabetes and another 86 million affected by prediabetes, chances are, you do. In fact, diabetes has become so prevalent that the prevention and management of these serious diseases have become a national priority. In March … Continue reading PCORnet Partner Networks Collaborate with Federal Agencies to Evaluate Effects of Health Policy on Diabetes Outcomes

PCORnet Joins Forces with Sentinel to Link Data for More Robust Public Health Research

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What if the National Patient-Centered Clinical Research Network (PCORnet) teamed up with another robust distributed research network to combine powers in the pursuit of clinical research? Could researchers use the linkage to enhance complete data for surveillance and glean insights that allow people to make better informed, evidence-based decisions on important health-related matters? A new … Continue reading PCORnet Joins Forces with Sentinel to Link Data for More Robust Public Health Research

Creaky and Creative: AR-PoWER Captivates Audiences with Fun and Interactive Engagement Approaches

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May is National Arthritis Awareness Month, a time to raise awareness about the number one cause of disability in the country: arthritis. According to the Arthritis Foundation, more than 50 million adults have doctor-diagnosed arthritis, and by the year 2040, that number is expected to grow to more than 78 million. A Patient-Powered Research Network … Continue reading Creaky and Creative: AR-PoWER Captivates Audiences with Fun and Interactive Engagement Approaches

A Look into PCORnet’s Coordinating Center: Harmonizing Data Across a Vast Network

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At the center of the National Patient-Centered Clinical Research Network (PCORnet), PCORI’s most ambitious initiative to date, lies the PCORnet Coordinating Center, a hard-working engine that combines three prominent research organizations, Duke Clinical Research Institute, Genetic Alliance, and Harvard Pilgrim Health Care Institute, to effectively manage the entire Network’s data and engagement activities. The Coordinating … Continue reading A Look into PCORnet’s Coordinating Center: Harmonizing Data Across a Vast Network

PCORnet’s PEDSnet CDRN Longitudinal Study of Data Quality Published in Journal of American Medical Informatics Association

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Data quality is a crucial consideration when leveraging a Clinical Data Research Network (CDRN) to conduct large-scale research. The PEDSnet CDRN is helping to validate the utility of CDRN data with a study featuring an in-depth analysis of its data quality that was recently featured in the Journal of American Medical Informatics Association (JAMIA). PEDSnet … Continue reading PCORnet’s PEDSnet CDRN Longitudinal Study of Data Quality Published in Journal of American Medical Informatics Association