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In the News: For Big-Data Scientists, ‘Janitor Work’ Is Key Hurdle to Insights

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Technology revolutions come in measured, sometimes foot-dragging steps. The lab science and marketing enthusiasm tend to underestimate the bottlenecks to progress that must be overcome with hard work and practical engineering.
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In the News: US big-data health network launches aspirin study

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PCORI clinical-research initiative will collect information on some 30 million people. Sara Reardon, Nature.com; 06 August 2014 One of the largest big-data experiments in health care has set its first research target. The leaders of the Patient-Centered Outcomes Research Institute (PCORI) in Washington DC voted on 29 July to focus the institute’s first clinical trial … Continue reading In the News: US big-data health network launches aspirin study

Announcement: New IOM Brief on PCORnet and the Learning Health System

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An April 2014 workshop co-produced the PCORI and the Institute of Medicine (IOM) engaged health system leaders in a discussion of the issues, challenges, and approaches that present the greatest opportunity for executive engagement in leadership of efforts to generate new knowledge in the routine delivery of medical care as part of a continuously learning … Continue reading Announcement: New IOM Brief on PCORnet and the Learning Health System

In the News: Changing the Face of Sleep Apnea

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Sleep Review; posted May 14, 2014 MyApnea.org, an ambitious new online network backed by a million dollar grant, will have 50,000 members within the next 18 months. Powered by patients, this site has the potential to change how patients, professionals, and the public understand obstructive sleep apnea. MyApnea.org [or Sleep Apnea Patient Centered Outcomes Network … Continue reading In the News: Changing the Face of Sleep Apnea

In the News: PCORI in the Literature (JAMIA Special Issue)

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JAMIA Issue Features PCORnet: May 2014, Volume 21, Issue 3 A special collection of papers in the Journal of the American Medical Informatics Association explores PCORnet, the National Patient-Centered Clinical Research Network initiative. This special set of articles includes an editorial by National Institutes of Health Director Francis Collins, MD, PhD, an overview of PCORnet’s … Continue reading In the News: PCORI in the Literature (JAMIA Special Issue)

In the News: The Promise and Perils of a New Project to Share Individual Patient Records

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Posted April 17, 2014; The Diane Rehm Show, NPR The Promise and Perils of a New Project to Share Individual Patient Records In a new effort to improve medical care, a group of hospitals, clinics and insurers is pooling patient data. We discuss the promise and perils of sharing individual patient records.  One panelist is Dr. … Continue reading In the News: The Promise and Perils of a New Project to Share Individual Patient Records

In the News: Building PCORnet as a Secure Platform for Outcomes Research

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April 17, 2014 by Joe Selby, MD, MPH, PCORI.org As we’ve begun the 18-month development of PCORnet, the National Patient-Centered Clinical Research Network, many people have expressed their excitement about the promise of this ambitious effort. After all, PCORnet aims to harness the potential of the vast amounts of health care data stored in electronic … Continue reading In the News: Building PCORnet as a Secure Platform for Outcomes Research

PCORnet Overview: Master Slidedeck for Presenters

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This is the “master” slide deck that explains PCORnet in detail, including the rationale behind it, what it will do to achieve its goals, and how it is structured. It is expected that there will be some tailoring of content for the specific audience and the purpose of the presentation, but we encourage presenters to … Continue reading PCORnet Overview: Master Slidedeck for Presenters

Call for Papers: JAMIA Issue on Biomedical Data Standards

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The Journal of the American Medical Informatics Association announces a Call for Papers for a Special focus Issue on Biomedical Data Standards Summary of Special Focus Issue JAMIA guest editors Drs. Rachel Richesson (PCORnet Rare Diseases Task Force) and Christopher Chute are soliciting submissions on the role and use of biomedical data standards in the … Continue reading Call for Papers: JAMIA Issue on Biomedical Data Standards

In the News: Researchers Leverage Database of Chicago Residents to Address Health Disparities

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Greg Goth, Health Data Management. Posted April 14, 2014 A consortium of health data researchers in Chicago is leveraging work on several projects and a recent $7 million round of funding from the Patient-Centered Outcomes Research Institute to advance both study recruitment and quantitatively-based public health delivery. The PCORI-funded project, the Chicago Area Patient-Centered Clinical … Continue reading In the News: Researchers Leverage Database of Chicago Residents to Address Health Disparities