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In the News: Patient-Centered Clinical Research Networks – The Patients’ Role

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NPC Now: Published on YouTube on Feb 26, 2014 Sarah Daugherty, PhD, MPH, senior program officer, comparative effectiveness research (CER) methods and infrastructure at the Patient-Centered Outcomes Research Institute (PCORI), highlights the important and practical role patients are expected to have in the Patient-Centered Clinical Research Networks (PCORnet) being developed to improve the nation’s capacity … Continue reading In the News: Patient-Centered Clinical Research Networks – The Patients’ Role

In the News: PLOS’ New Data Policy: Public Access to Data

PLOS Blogs | By Liz Silva  Posted: February 24, 2014 In an effort to increase access to this data, we are now revising our data-sharing policy for all PLOS journals: authors must make all data publicly available, without restriction, immediately upon publication of the article. Beginning March 3rd, 2014, all authors who submit to a PLOS journal will … Continue reading In the News: PLOS’ New Data Policy: Public Access to Data

In the News: PCORI at 3 Years — Progress, Lessons, and Plans

February 13, 2014 Joe Selby, MD, MPH, executive director of the Patient-Centered Outcomes Research Institute (PCORI), shares the progress and lessons learned since PCORI launched three years ago in a NEJM perspective piece published this week. PCORI has established distinctive pathways for funding and conducting practical research and a solid foundation of funded studies. The … Continue reading In the News: PCORI at 3 Years — Progress, Lessons, and Plans

In the News: J&J to allow access to clinical research through Yale open-data project

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By Sabriya Rice, Modern Healthcare  Posted: January 30, 2014 – 3:00 pm ET Johnson & Johnson entered an agreement to share clinical trial data through the Yale School of Medicine’s Open Data Access (YODA) Project, which will serve as an independent body to review requests from investigators and physicians seeking access. The arrangement is the first … Continue reading In the News: J&J to allow access to clinical research through Yale open-data project

In the News: Researchers Hope New Data Collaborative Will Lower Health Care Costs, Improve Treatment

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Posted: Sun 10:22 AM, Feb 09, 2014 WSAW-TV 1114 Grand Ave. Wausau, WI If you get checked by a doctor in the Marshfield Clinic System, you may soon have a better diagnosis thanks to a new program that will link ten health centers in the nation together. The Greater Plains Collaborative, part of the Patient-Centered … Continue reading In the News: Researchers Hope New Data Collaborative Will Lower Health Care Costs, Improve Treatment

In the News: Building the Data Infrastructure for Comparative Effectiveness Research

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Center for Data Innovation; Posted: January 12, 2014 PCORnet will comprise two types of subsidiary data sources: Clinical Data Research Networks, which contain information from hospitals and other providers, and Patient-Powered Research Networks, which contain information from patient groups centered around particular conditions. PCORI will provide funding to create 11 such clinical networks, including projects at the … Continue reading In the News: Building the Data Infrastructure for Comparative Effectiveness Research

Creating a learning healthcare system; defining a new approach to clinical research

The future of clinical research and healthcare innovation, according to Rob Califf, MD, co-PI for the PCORnet initiative, lies in innovating the way medical data is collected, stored, manipulated, and disseminated. In a presentation at a recent Research Conference for the Duke Clinical Research Institute, Califf, Vice Chancellor for Clinical and Translational Research at Duke … Continue reading Creating a learning healthcare system; defining a new approach to clinical research

In the News: A New Approach to PCORI Research Funding-Pragmatic Clinical Trials

December 19, 2013 Patient-Centered Outcomes Research Institute | 1828 L Street, NW | Suite 900 | Washington | DC | 20036 PCORI is entering a new period of major investments in patient-centered comparative effectiveness research. As part of that effort, we plan a new funding approach, one that combines aspects of both our investigator-initiated broad … Continue reading In the News: A New Approach to PCORI Research Funding-Pragmatic Clinical Trials

In the News: PCORI Awards $93.5 Million to Develop National Network to Support More Efficient Patient-Centered Research

29 awardees will refine, integrate individual networks to create overarching national network WASHINGTON, D.C. (Dec. 17, 2013) – The Patient-Centered Outcomes Research Institute (PCORI) today approved $93.5 million to support 29 clinical research data networks that together will form an ambitious new resource known as PCORnet, the National Patient-Centered Clinical Research Network. Read more >> For … Continue reading In the News: PCORI Awards $93.5 Million to Develop National Network to Support More Efficient Patient-Centered Research

In the News: PCORnet: Meeting Clinical Trials’ Need for Speed

Posted on December 17, 2013 by Dr. Francis Collins Comparative effectiveness research (CER) studies aim to determine what works (and what doesn’t) in the real world of clinical medicine. Such studies are essential to identify the safest, most effective ways of detecting, treating, and preventing disease. Yet, both patients and researchers are often frustrated by … Continue reading In the News: PCORnet: Meeting Clinical Trials’ Need for Speed