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In the News: PCORI in the Literature (JAMIA Special Issue)

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JAMIA Issue Features PCORnet: May 2014, Volume 21, Issue 3 A special collection of papers in the Journal of the American Medical Informatics Association explores PCORnet, the National Patient-Centered Clinical Research Network initiative. This special set of articles includes an editorial by National Institutes of Health Director Francis Collins, MD, PhD, an overview of PCORnet’s … Continue reading In the News: PCORI in the Literature (JAMIA Special Issue)

In the News: The Promise and Perils of a New Project to Share Individual Patient Records

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Posted April 17, 2014; The Diane Rehm Show, NPR The Promise and Perils of a New Project to Share Individual Patient Records In a new effort to improve medical care, a group of hospitals, clinics and insurers is pooling patient data. We discuss the promise and perils of sharing individual patient records.  One panelist is Dr. … Continue reading In the News: The Promise and Perils of a New Project to Share Individual Patient Records

In the News: Building PCORnet as a Secure Platform for Outcomes Research

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April 17, 2014 by Joe Selby, MD, MPH, PCORI.org As we’ve begun the 18-month development of PCORnet, the National Patient-Centered Clinical Research Network, many people have expressed their excitement about the promise of this ambitious effort. After all, PCORnet aims to harness the potential of the vast amounts of health care data stored in electronic … Continue reading In the News: Building PCORnet as a Secure Platform for Outcomes Research

PCORnet Overview: Master Slidedeck for Presenters

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This is the “master” slide deck that explains PCORnet in detail, including the rationale behind it, what it will do to achieve its goals, and how it is structured. It is expected that there will be some tailoring of content for the specific audience and the purpose of the presentation, but we encourage presenters to … Continue reading PCORnet Overview: Master Slidedeck for Presenters

Call for Papers: JAMIA Issue on Biomedical Data Standards

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The Journal of the American Medical Informatics Association announces a Call for Papers for a Special focus Issue on Biomedical Data Standards Summary of Special Focus Issue JAMIA guest editors Drs. Rachel Richesson (PCORnet Rare Diseases Task Force) and Christopher Chute are soliciting submissions on the role and use of biomedical data standards in the … Continue reading Call for Papers: JAMIA Issue on Biomedical Data Standards

In the News: Researchers Leverage Database of Chicago Residents to Address Health Disparities

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Greg Goth, Health Data Management. Posted April 14, 2014 A consortium of health data researchers in Chicago is leveraging work on several projects and a recent $7 million round of funding from the Patient-Centered Outcomes Research Institute to advance both study recruitment and quantitatively-based public health delivery. The PCORI-funded project, the Chicago Area Patient-Centered Clinical … Continue reading In the News: Researchers Leverage Database of Chicago Residents to Address Health Disparities

In the News: Scientists embark on unprecedented effort to connect millions of patient medical records

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By Ariana Eunjung Cha, The Washington Post. Published: April 15  Inside an otherwise ordinary office building in lower Manhattan, government-funded scientists have begun collecting and connecting together terabytes of patient medical records in what may be one of the most radical projects in health care ever attempted. The data — from every patient treated at one of … Continue reading In the News: Scientists embark on unprecedented effort to connect millions of patient medical records

In the News: Patient-Centered Clinical Research Networks – The Patients’ Role

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NPC Now: Published on YouTube on Feb 26, 2014 Sarah Daugherty, PhD, MPH, senior program officer, comparative effectiveness research (CER) methods and infrastructure at the Patient-Centered Outcomes Research Institute (PCORI), highlights the important and practical role patients are expected to have in the Patient-Centered Clinical Research Networks (PCORnet) being developed to improve the nation’s capacity … Continue reading In the News: Patient-Centered Clinical Research Networks – The Patients’ Role

In the News: PLOS’ New Data Policy: Public Access to Data

PLOS Blogs | By Liz Silva  Posted: February 24, 2014 In an effort to increase access to this data, we are now revising our data-sharing policy for all PLOS journals: authors must make all data publicly available, without restriction, immediately upon publication of the article. Beginning March 3rd, 2014, all authors who submit to a PLOS journal will … Continue reading In the News: PLOS’ New Data Policy: Public Access to Data

In the News: PCORI at 3 Years — Progress, Lessons, and Plans

February 13, 2014 Joe Selby, MD, MPH, executive director of the Patient-Centered Outcomes Research Institute (PCORI), shares the progress and lessons learned since PCORI launched three years ago in a NEJM perspective piece published this week. PCORI has established distinctive pathways for funding and conducting practical research and a solid foundation of funded studies. The … Continue reading In the News: PCORI at 3 Years — Progress, Lessons, and Plans