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PCORnet Joins Forces with Sentinel to Link Data for More Robust Public Health Research

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What if the National Patient-Centered Clinical Research Network (PCORnet) teamed up with another robust distributed research network to combine powers in the pursuit of clinical research? Could researchers use the linkage to enhance complete data for surveillance and glean insights that allow people to make better informed, evidence-based decisions on important health-related matters? A new … Continue reading PCORnet Joins Forces with Sentinel to Link Data for More Robust Public Health Research

Creaky and Creative: AR-PoWER Captivates Audiences with Fun and Interactive Engagement Approaches

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May is National Arthritis Awareness Month, a time to raise awareness about the number one cause of disability in the country: arthritis. According to the Arthritis Foundation, more than 50 million adults have doctor-diagnosed arthritis, and by the year 2040, that number is expected to grow to more than 78 million. A Patient-Powered Research Network … Continue reading Creaky and Creative: AR-PoWER Captivates Audiences with Fun and Interactive Engagement Approaches

A Look into PCORnet’s Coordinating Center: Harmonizing Data Across a Vast Network

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At the center of the National Patient-Centered Clinical Research Network (PCORnet), PCORI’s most ambitious initiative to date, lies the PCORnet Coordinating Center, a hard-working engine that combines three prominent research organizations, Duke Clinical Research Institute, Genetic Alliance, and Harvard Pilgrim Health Care Institute, to effectively manage the entire Network’s data and engagement activities. The Coordinating … Continue reading A Look into PCORnet’s Coordinating Center: Harmonizing Data Across a Vast Network

PCORnet’s PEDSnet CDRN Longitudinal Study of Data Quality Published in Journal of American Medical Informatics Association

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Data quality is a crucial consideration when leveraging a Clinical Data Research Network (CDRN) to conduct large-scale research. The PEDSnet CDRN is helping to validate the utility of CDRN data with a study featuring an in-depth analysis of its data quality that was recently featured in the Journal of American Medical Informatics Association (JAMIA). PEDSnet … Continue reading PCORnet’s PEDSnet CDRN Longitudinal Study of Data Quality Published in Journal of American Medical Informatics Association

Health Datapalooza Conference Session Highlights Patient Roles in PCORnet

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When Heather Siefers visits her doctor to discuss her Multiple Sclerosis (MS), her doctor will tell her about the data from her lab tests and measures such as her liver function, blood pressure and weight. However, Siefers asks: shouldn’t data on quality of life indicators be captured alongside clinical data? She is also interested in … Continue reading Health Datapalooza Conference Session Highlights Patient Roles in PCORnet

PCORnet Releases Refreshed Data and Expanded Conditions of Interest

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The National Patient-Centered Clinical Research Network, PCORnet, today released a refreshed view of its data that sheds light on more recent patient encounters than was previously available and includes an expanded list of conditions of interest. Founded in 2014 as an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI), PCORnet aims to speed the … Continue reading PCORnet Releases Refreshed Data and Expanded Conditions of Interest

Influential Healthcare Publications Recognize PCORnet for Its Important Role in Driving Patient-Centered Research

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As the National Patient-Centered Clinical Research Network (PCORnet), a PCORI initiative, continues to gain momentum as a model for patient-centered research, several notable publications are recognizing the Network’s innovation. Three recent publications are out that provide evidence of PCORnet’s increasing influence in the movement toward community-driven research. The first is a discussion paper released by … Continue reading Influential Healthcare Publications Recognize PCORnet for Its Important Role in Driving Patient-Centered Research

Interactive PCORI Workshops Provide Key Insights to PCORnet Researchers

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The Patient-Centered Outcomes Research Institute (PCORI) is optimizing its health research funding process by connecting directly with applicants through interactive workshops designed to offer tips for engaging patients and developing competitive funding applications. PCORI, which is known across the research community for its innovative and ambitious National Patient-Centered Clinical Research Network (PCORnet), also uses its … Continue reading Interactive PCORI Workshops Provide Key Insights to PCORnet Researchers

PCORnet Executive Committee Chair and Council Co-Chair Leads NEST Coordinating Center

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Rachael Fleurence, Ph.D, PCORI Program Director and PCORnet Executive Committee Chair and Council Co-Chair, has been selected to serve as Executive Director for the National Evaluation System for health Technology Coordinating Center (NESTcc). NESTcc was established by the Medical Device Innovation Consortium (MDIC) in September 2016 through an FDA grant. MDIC is a public-private partnership … Continue reading PCORnet Executive Committee Chair and Council Co-Chair Leads NEST Coordinating Center

PCORnet Members to Impact AMIA Joint Summits on Translational Science

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Many PCORnet colleagues will be at the AMIA Joint Summits on Translational Science this week in San Francisco, CA.  The summits will foster interactions between three informatics communities: translational bioinformatics, clinical research informatics and informatics implementation. To make networking with your PCORnet colleagues easier, refer to this list of sessions featuring PCORnet leaders PCORnet-led Sessions … Continue reading PCORnet Members to Impact AMIA Joint Summits on Translational Science