The Patient-Centered Outcomes Research Institute (PCORI) Annual Meeting is planned for November 17-19, 2016, and enthusiasm is high for this prime opportunity to showcase the National Patient-Centered Clinical Research Network, PCORnet, as one of PCORI’s most innovative, data-driven initiatives to transform clinical research. Held at the Gaylord National Resort and Convention Center in National Harbor, Maryland, the meeting is a must-attend event for thought leaders, researchers, patients, family caregivers, clinicians, and key stakeholders who are eager to learn about important trends in patient-centered research and promising progress in PCORI-funded studies.
PCORnet will be in the spotlight during several sessions at the Annual Meeting. The first will be during the meeting’s opening plenary session on Thursday, November 17, which is focused on how to make patient needs and values central to health research and decision-making. Neely Williams, MDiv, patient co-investigator for PCORnet Mid-South Clinical Data Research Network (CDRN) and the patient co-principal investigator for the PCORnet Bariatric Study will participate in a panel discussion about the power of PCORnet to change the research conversation and improve outcomes for underrepresented populations. Watch Neely share her powerful story in the video below and read her recent opinion editorial published in The Tennessean.
On Friday, November 18, PCORnet Engagement, Data, and Research Committee leadership and members will participate in a panel discussion that highlights advancements in enhancing public trust, models of engagement for participants and clinicians, current research underway utilizing the network, and advancements in the data infrastructure.
Finally, attendees will have an opportunity to see “PCORnet in Action: The Journey Toward People-Driven Research Transformation” at a workshop session on Saturday, November 19 from 10:30 a.m. to 4 p.m. ET. The morning portion of the session will highlight current research underway within the Network, while the afternoon portion of the session will focus on innovative tools and resources available within PCORnet to external investigators. It will also feature an interactive poster session where attendees can learn more about PCORnet’s demonstration studies, including the research objectives for these studies and what they are illustrating about PCORnet’s power to conduct efficient, trustworthy clinical research.
PCORnet, the National Patient-Centered Clinical Research Network, is an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI). The goal of PCORnet is to improve the nation’s capacity to conduct clinical research by creating a large, highly representative network that directly involves patients in the development and execution of research. More information is available at www.pcornet.org.
The Patient-Centered Outcomes Research Institute (PCORI) is an independent, nonprofit organization authorized by Congress in 2010. Its mission is to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work. More information is available at www.pcori.org.