PCORnet Releases Refreshed Data and Expanded Conditions of Interest

The National Patient-Centered Clinical Research Network, PCORnet, today released a refreshed view of its data that sheds light on more recent patient encounters than was previously available and includes an expanded list of conditions of interest. Founded in 2014 as an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI), PCORnet aims to speed the pace and quality of patient-centered clinical research in the United States by engaging stakeholders across all steps of the research process.

In October 2016, PCORnet offered the first glimpse inside the Network when it released initial data on the demographics and nine conditions of interest of up to 41 million individuals who received care at a PCORnet network partner in 2014. The new data released today expands that scope to nearly 46 million individuals and offers a more recent view of encounters spanning from October 1, 2014 to September 30, 2015. In addition to the nine conditions of interest included in the initial release, the updated report also offers counts for diabetes patients, offering researchers new insights into this important population. These enhanced numbers reflect the growing momentum behind PCORnet – in comparison to the data released in October 2016, today’s numbers are sourced from more sites and patient encounters for each condition.

“We are pleased to offer researchers a more robust view of the data from more than 100 health institutions and the millions of Americans PCORnet represents,” said PCORI Executive Director Joe Selby, MD, MPH. “In the coming months, we will continue to refine and refresh our data in pursuit of our mission to unite people, clinicians, and health systems to empower patients with evidence-based insights.”

 

About PCORnet

PCORnet, the National Patient-Centered Clinical Research Network, is an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI). The goal of PCORnet is to improve the nation’s capacity to conduct clinical research by creating a large, highly representative network that directly involves patients in the development and execution of research. More information is available at www.pcornet.org.

About PCORI

The Patient-Centered Outcomes Research Institute (PCORI) is an independent, nonprofit organization authorized by Congress in 2010. Its mission is to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work. More information is available at www.pcori.org.