PCORnet Announces 11 Collaborative Research Groups to Speed Insights to Patients

The National Patient Centered Clinical Research Network (PCORnet), a PCORI initiative, today announced the launch of 11 Collaborative Research Groups (CRGs) designed to catalyze new multi-network research. Each CRG team is composed of content experts from within the Network focused on generating engaging, high-priority research questions that will help patients and clinicians make informed healthcare decisions.

“Every week, if not daily, I have to look at a patient or caregiver and tell them that I hear them, and I understand their needs, but we simply do not have an answer,” said Tim Carey, PCORnet co-investigator, Mid-South Clinical Data Research Network, and member of the PCORnet Research Committee. “It is a stark reminder that we cannot be complacent—we must be impatient about uncovering insights that matter.”

In the below video, Tim explains more about how PCORnet’s CRGs are increasing the pace of research in an effort to quickly and efficiently incorporate clinical research findings into practice that will empower patients and their caregivers to make informed decisions.

One of the most compelling features of PCORnet’s CRGs is that they tap expertise from different disciplines, bringing a holistic perspective sorely needed in clinical research. The CRGs’ diverse perspectives will ensure PCORnet is examining the right questions in the right way to bring the answers that matter most to patients and caregivers.

PCORnet’s CRGs are doing just that: collaborating with advocates, partner networks, and funders early on to rapidly develop the most important questions and use PCORnet’s unique infrastructure. PCORnet’s CRGs are listed below; each is focused on bringing new insights to a specific therapeutic area or research method.

  • Autoimmune and Systemic Inflammatory Syndromes
  • Behavioral Health
  • Cancer
  • Cardiovascular Health
  • Diabetes and Obesity
  • Health Disparities
  • Health Systems, Health Policy and Public Health
  • Hospital Medicine
  • Kidney Health
  • Pediatrics
  • Pulmonary

Some of the CRGs may also contain Research Interest Groups (RIGs) that are dedicated to specific research areas. For example, the Cardiovascular Health CRG has specific RIGs for Women and Heart Disease, Hypertension and Congestive Heart Failure.

In addition to developing high-priority research questions, the CRGs are busy developing common data elements relevant to the CRG focus area for use in the Common Data Model.  Through these and other innovative efforts, the CRGs are working to advance the science of patient-centered outcomes and pragmatic research through innovative methods, and assisting the PCORnet Front Door with research requests.

“It is absolutely essential that we not only reduce the timing and cost of research, but also ensure we are conducting rigorous studies with results we can be confident about,” said Tim. “PCORnet’s CRGs are poised to drive progress on all of these fronts, and I am looking forward to seeing their power in action.”

 

About PCORnet

PCORnet, the National Patient-Centered Clinical Research Network, is an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI). The goal of PCORnet is to improve the nation’s capacity to conduct clinical research by creating a large, highly representative network that directly involves patients in the development and execution of research. More information is available at www.pcornet.org.

About PCORI

The Patient-Centered Outcomes Research Institute (PCORI) is an independent, nonprofit organization authorized by Congress in 2010. Its mission is to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work. More information is available at www.pcori.org.